Here are the latest developments I can share about Endometriosis UK from recent reporting:
-
Endometriosis UK hosted a roundtable in late 2025 focused on the NHS 10-year Health Plan and how it could impact endometriosis care, including discussions on reducing diagnosis times and improving access through neighbourhood health services. They’re also preparing a report for the Department for Health and Social Care to influence policy [Endometriosis UK November Roundup, November 2025]. [cite ]
-
There has been ongoing emphasis on data and care pathways, with UK-wide discussions about establishing national registries or better data collection to inform treatment choices and track outcomes as part of the broader Women’s Health Strategy. This aligns with patient calls for more robust data to guide care decisions. [BBC article on endometriosis registry, 2025; BBC News synopsis, 2025] [cite ][cite ]
-
Public awareness and advocacy remain active in 2026, with media coverage highlighting delayed diagnoses (often many years) and calls for urgent action to improve access to diagnosis, treatment, and workplace support for people with endometriosis. Campaigns and media features emphasize the need for systemic changes within NHS and workplaces. ITV News coverage in April 2026 underscores ongoing concerns about care improvements [ITV News, 2026-04-08]. [cite ]
-
In related progress, UK hospitals and universities have continued research and local service developments, including new support centres and localized care initiatives to address gaps in access and treatment options in some regions. BBC coverage of local endometriosis centres and university-led research points to regional efforts to improve patient experiences [BBC Hull local centre article, 2025-10-02; Leeds Beckett research piece, 2024]. [cite ][cite ]
If you’d like, I can pull the most current headlines and summarize any particular source (e.g., BBC, Endometriosis UK site, ITV) with direct quotes and dates. I can also set up a quick brief that tracks ongoing updates through the next few weeks.
Sources
This month we were delighted to host a roundtable sponsored by Gill Furniss MP on what the Government’s 10 Year Health Plan could mean for the future of endometriosis care. We were joined by Members of Parliament, patient advocates, and leading experts in endometriosis and women’s healthcare to discuss various topics. These included how the Government can bring down the average time to diagnosis, how Neighbourhood Health Services can be implemented to ensure improved access to high quality,...
www.endometriosis-uk.orgThe charity-run centre in Hull will help women with the condition that can cause extreme pain.
www.bbc.co.ukHayley Barlow-Ford says better data would have helped her make an "informed choice" about surgery.
www.bbc.co.ukThe experience of living with endometriosis appears as frustrating and painful today as it was at the turn of the millennium, worrying new data shows.
www.leedsbeckett.ac.ukSky News - First for Breaking News, video, headlines, analysis and top stories from business, politics, entertainment and more in the UK and worldwide.
news.sky.comWatch the latest from ITV News - The debilitating condition affects around one in 10 women, yet a diagnosis can take up to a decade.
www.itv.comHayley Barlow-Ford says better data would have helped her make an "informed choice" about surgery.
www.bbc.comThis year, our theme is ‘Endometriosis Doesn’t Wait’. Endometriosis doesn’t wait whilst you’re trying to get a diagnosis or access care. It doesn’t wait for your career. Your education. Your social life or your relationships. Our new report: *The State of Endometriosis Care in the UK* shows that the average time to receive a diagnosis is now 9 years and 4 months. For women and those assigned female at birth from communities of colour, it’s even longer at 11 years.
www.endometriosis-uk.org